Céline Dion in tears while talking about her condition, Stiff Person Syndrome, in new documentary trailer from celine durand Watch Video

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✓ Published: 28-May-2024
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Céline Dion in tears while talking about her condition, Stiff Person Syndrome, in new documentary trailer from celine durand
⏲ 1:2 👁 10.9M
Celine Dion, the iconic Canadian singer who has captivated audiences for decades with her powerful vocals and captivating stage presence, is about to embark on an exciting and deeply personal chapter. She is set to release a documentary titled \
⏲ 2:18 ✓ 29-May-2024
By JOHN DEVLIN and MARTYN McLAUGHLIN<br/><br/>Disabled artists across Scotland have called on venues, curators, and further education bodies involved in the visual arts scene to make widespread improvements around access and representation, with several practitioners warning of a lack of understanding of the barriers facing artists and audiences at cultural spaces.<br/><br/>A new documentary for The Scotsman, filmed and produced by John Devlin, reveals how some physically disabled artists have been unable to attend venues due to a lack of disabled access, and left feeling “unwelcome” due to the restrictions in place. They have questioned whether organisations unable to stage accessible exhibitions should continue to receive public funding, and warned the knock-on effect of a lack of representation could discourage young disabled Scots from pursuing a career in the arts.<br/><br/>The issues around accessibility and representation have flared up ahead of the upcoming Glasgow International festival of contemporary art. The programme for the prestigious biennial event includes an exhibition at the Celine Gallery, located on the the third floor of a tenement building in the city’s southside, accessible only by three flights of stairs. One artist, Penny Anderson, described that decision as “wrong.”<br/><br/>The Glasgow-based artist and sculptor, who has multiple sclerosis, said it was unclear who, if anyone, was responsible for ensuring such exhibitions were accessible, and was left frustrated after raising the issue with Glasgow Life, councillors in the city, and Creative Scotland.<br/><br/>Under the Equality Act 2010, art galleries are required to make “reasonable adjustments,” if asked, to ensure that disabled people can use its services. Ms Anderson said the legislation should be followed by Glasgow International. “They have to make reasonable adjustments to allow inclusion, and I think a reasonable adjustment is only including accessible galleries,” she explained.”<br/><br/>Ms Anderson told The Scotsman the accessibility issues went beyond any one gallery, and said there was a widespread lack of knowledge across the sector about how to include disabled artists and visitors. “They don’t understand the different levels of mobility impairment of physical disability,” she added. “I’ve had people say, ‘But we’ve got a ramp’. Ramps make my life even harder. What I need is stairs and a handrail. Even if you have a ramp, wheelchairs might not be able to use the ramp, and I think people think they know, and just assume they know, but they don’t actually ask disabled people.”<br/><br/>Ruth Mutch, an illustrator, who is autistic and has Hypermobile Ehlers-Danlos syndrome - a condition that affects the joints, causing hypermobility, digestive problems and joint pain as well as extreme fatigue - echoed Ms Anderson’s concerns, recounting her experience at college where she was unable to access materials without assistance.<br/><br/>
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Celine Dion is aiming to perform for one final time for a TV special after her battle with Stiff Person Syndrome forced her away from the stage.
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